Today went really well! We were at the hospital the majority of the day! We met the GI doctor and pulmonary doctor! They were great! Both, plus ENT will do scopes tomorrow and biopsy parts of his lungs and esophagus. Pulmonary will lavage his lungs to test for aspiration.
Tomorrow is the biggest day, nothing to eat after 2:30am!!! We will get there at 8:30 and he will go back at 10:30!! Triple scopes will be done and an impedance probe put in place! The entire procedure should take about an hour! We will talk to the entire team after the scope!
We will stay in the hospital tomorrow night! I will update ASAP but we will definitely know more tomorrow!!!
Pray Hard! Love you all!!!
God, please heal Brayton's airway perfectly and completely!!!
Tuesday, April 30, 2013
Monday, April 29, 2013
We are in Cincinnati!!!!
We have had a long day! Praise God that we made it here safe and sound!
Brayton LOVED flying! His face when we first took off was priceless! He was all grins and his eyes lit up! He has been a trooper! On our 2nd flight, he fell asleep and slept until we landed! He has had an exciting day! As I type, he is playing with the hotel's phone and running all over the place!
Cincinnati Children's Hospital is like a city in itself! Luckily, we found where we needed to go for tomorrow! It didn't seem too complicated!
It is 5:00 here and we are all in our rooms resting! Getting up at 2 am is finally taking its toll! We are staying in tonight and hopefully we will be recharged by morning!
I will try to blog every night to keep everyone updated! We love you all so much and appreciate the thoughts and prayers!
Brayton LOVED flying! His face when we first took off was priceless! He was all grins and his eyes lit up! He has been a trooper! On our 2nd flight, he fell asleep and slept until we landed! He has had an exciting day! As I type, he is playing with the hotel's phone and running all over the place!
Cincinnati Children's Hospital is like a city in itself! Luckily, we found where we needed to go for tomorrow! It didn't seem too complicated!
It is 5:00 here and we are all in our rooms resting! Getting up at 2 am is finally taking its toll! We are staying in tonight and hopefully we will be recharged by morning!
I will try to blog every night to keep everyone updated! We love you all so much and appreciate the thoughts and prayers!
Friday, April 26, 2013
Our Itinerary for Cincinnati!
In a few days, we will be flying to Cincinnati, Ohio!!! Yay!!! We are excited and anxious! My mom, Mr. Earl, and Mrs. Jean will all be traveling with Luke, Brayton, and me! Brayton will be seeing the Aerodigestive team!
Information on the Aerodigestive Team:
http://www.cincinnatichildrens.org/service/a/aerodigestive/default/
Our schedule is as follows:
Monday: We will fly out bright and early! We will get to Cincinnati before lunch! Luke and I plan to find the hospital and figure out where all of the appointments are!
Tuesday: Brayton has an appointment at 10:30 for an anesthesia consult! He also has to have a chest x-ray then we have a pulmonologist (lung doctor) appointment at 2:15!
Wednesday: Brayton will go under anesthesia for 2 scopes at 10:30am! One with the pulmonologist (lung doctor) and one with ENT (ear, nose, throat doctor). The ENT doing the scope is the famous Dr. Cotton who is world renown! Brayton will be admitted to the hospital because while he is under, the gastrologist (stomach doctor) will put down a 24 hour impedance probe to check for acid reflux! We will spend Wednesday night in the hospital!
Dr. Cotton's biography: http://www.cincinnatichildrens.org/bio/c/robin-cotton/
Thursday: We will be discharged and have an appointment at 8:00am with ENT to do a swallow study test.
Friday: We will all fly back to good ol' Bogue Chitto!!! :)
Thank you all for all of the prayers! God led us here and I know He has a plan! Love you all!
God, please heal Brayton's airway perfectly and completely!
Information on the Aerodigestive Team:
http://www.cincinnatichildrens.org/service/a/aerodigestive/default/
Our schedule is as follows:
Monday: We will fly out bright and early! We will get to Cincinnati before lunch! Luke and I plan to find the hospital and figure out where all of the appointments are!
Tuesday: Brayton has an appointment at 10:30 for an anesthesia consult! He also has to have a chest x-ray then we have a pulmonologist (lung doctor) appointment at 2:15!
Wednesday: Brayton will go under anesthesia for 2 scopes at 10:30am! One with the pulmonologist (lung doctor) and one with ENT (ear, nose, throat doctor). The ENT doing the scope is the famous Dr. Cotton who is world renown! Brayton will be admitted to the hospital because while he is under, the gastrologist (stomach doctor) will put down a 24 hour impedance probe to check for acid reflux! We will spend Wednesday night in the hospital!
Dr. Cotton's biography: http://www.cincinnatichildrens.org/bio/c/robin-cotton/
Thursday: We will be discharged and have an appointment at 8:00am with ENT to do a swallow study test.
Friday: We will all fly back to good ol' Bogue Chitto!!! :)
Thank you all for all of the prayers! God led us here and I know He has a plan! Love you all!
God, please heal Brayton's airway perfectly and completely!
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